Our son Freddie was born at 27 weeks and sustained a Grade 3 and Grade 4 IVH at birth. Freddie stayed in NICU for 10 weeks after he was born, which was a very difficult time for us as a family. We were told he may not walk, talk, or eat, which was heartbreaking.
NICE gave us as parents the confidence and knowledge to help Freddie in a way that we wouldn’t have known without their support.
My son Otis is 2 years old. He is a very happy, social, lively character who will always make you smile. He loves reading books, playing outside, cars, the Gruffalo and ice cream.
We will always be grateful for everything you do for Otis. Thank you for believing in our lovely boy.
We have two boys, aged 5 and 3. They both have a rare life limiting neurological progressive disease. They cannot walk independently and are predominately wheelchair users.
NICE is so much more than this, NICE is a lifeline. NICE isn’t just the Centre for Movement Disorders. NICE is our home.
My name is Malcolm, I was 44 years old when I was diagnosed with multiple sclerosis (MS) in August 2004. At the time it hit me like a shot from a gun, to be honest. I didn’t know what MS was, what to do or what to think. In all it took roughly two years to come to terms with my condition.
No-one had ever explained what happened to affect my condition, like the Conductors did. I had been told by Neurologists ‘this is what you have you will have to live with it.’
Malcolm
I’m Ray and I am in my 80s. I started out working in restaurants all over the UK before signing on for the Army at 17. I was stationed at various barracks around the UK before being sent to Germany, where I met my wife (we have now been married for over 60 years).
I cannot thank NICE enough for all their help and support and I have not a single bad word to say about the staff, the place or conductive education.
Ray
Rob suffered a stroke sometime at the start of “Lockdown” 2020. There were no definite signs except loss of speech and cognitive reactions; confusion and inability to undertake all the ordinary and usual things of life.
We find it very helpful to be with professional people who know about the difficulties experienced by patients and carers.
